AGENDA ‘Sharing best practice for stakeholder engagement’ Workshop Part of 2020 KREMS dementia conference program Date: November 18, 2020 Time: 13:00-14:30 CET


Workshop: “Sharing best practice for stakeholder engagement”

An opportunity for Alzheimer’s disease patient advocacy groups to explore effective ways to drive engagement with national and regional policy makers, media and other stakeholders. Be inspired, share experiences, test ideas and identify opportunities for collaboration.

Please note: Attendance numbers are limited to ensure the effectiveness of this workshop. If you are a patient advocate from Central or Eastern Europe and would like to attend this interactive session,

Please register in advance by E-mail:

This event is supported by Biogen



13:00 – 13:05

(5 mins)

Welcome and introductions – Annabel Cowper, Head, Patient Advocacy Alzheimer’s Disease, Europe, Canada and Partner Markets, Biogen

13:05 – 13:25

(20 mins)

Inspirational examples of regional (Central & Eastern Europe) advocacy collaboration

  • Case study from the oncology community (preparing for immunotherapies) Thomas Gelin, SVP, Europe Policy Lead, Health, Brussels, Porter Novelli
  • Case study from the Duchenne Muscular Dystrophy community (capability building) Dr Karolina Podolská, Parent Project, Czech Republic


13:25 – 13:55

(30 mins)

WORKSHOP PART 1: Group discussion of case studies


Attendees divided into groups, each with a facilitator


Group discussion of case studies

  • What did you learn from the case study? What is current involvement with external stakeholders?
  • With which stakeholders would you like to become more engaged?
  • Have these examples of sharing best practice informed you on how to better shape conversations with policy makers, media and other stakeholders
  • What national nuances may limit activities in your market?


Regroup to summarise key discussion points


13:55  – 14.25 (30 mins)

WORKSHOP 2: What does this mean in practice?


Group discussion

  • How might you prioritse next steps required to drive health policy change  – national and regional?
  • What additional training do you think you might need to achieve best practice results?
  • What potential can you see for future interactions with peers?


14:25 – 14.30

(5 mins)

Wrap up and Close - Thomas Gelin, SVP, Europe Policy Lead, Health, Brussels, Porter Novelli

Zum Anfang der Seite